Self Advocacy

tiarawithoutsilver 001Even warrior princesses crash and burn sometimes….

 

Oh, the time it takes! I lost my grant to get through the part D ‘coverage gap’ or also called ‘Donut Hole.’ I have to be on “Straight Medicare” because I see so many specialists and even my primary won’t accept one of the “Medicare Disadvantage Plans.” He says they are necessary (“Straight Medicare) for ‘Survivability’ but then, Dr. Morton can be a tad dark.

But right now, so am I? How am I going to afford my drugs in the spring of next year?

When they talk about Mental Health Reform, they should start with the Donut hole, because if you get someone all fixed up with mood stabilizers or antipsychotics, and then the donut hole hits…they go all the way back to square one. It’s Sisyphean even. Rolling that stone up the hill over and over only to have it roll down again.

There has got to be some rich person out there who would love my tardive dyskinesia book to be published, give me a small grant so I can pursue that. I’m already hunting down sources so I can get metrics. But who is listening to me, anyhow.

Nord, National Organization for Rare Diseases, has blown off four phone calls and four emails.

Why?

The reason Valeant jacked up so many prices

valeant guy

This is the former or soon to be former Valeant Pharma chief, Pearson. At one point last year they changed his compensation package and based it completely on his companies bottom line profits. So if they made no money, Pearson wouldn’t either. I wonder who did that to him. How could he win with a payment scheme like that? Maybe it wasn’t all his fault. I learn more as I go along.

Letter to the Editor re RX prices Boston Globe

Photo of a photo

 

I was beginning to think my favorite subject had disappeared into the campaign trail because it’s too complicated for The Donald. He can’t build a wall or mete out justice to the drug companies but he can agree with the rest of the bunch (for once…take that as his silence) and that’s why we aren’t hearing about it. Until last night when I read Boston Globe and saw…an article by the Dean of Harvard Med School’s really vague, non specific op ed. I only went to Stanford, so they won’t give me the column inches for an article but maybe my letter to the editor? I didn’t mention the bipolar bit.