Radio show “Breakfast With The Smiths” (I barely survived…and I’m a Smiths Fan)!

girlstogehterInstead of a picture of Moz, you get to see who owns us, who rules our world. They been thinkin’ outside the box lately. No reason, really. Getting older. Medicine from the Vet.

I listen to ‘indie 103.1, a podcast out of la using the handle of a former alternative radio station. I write during the morning of most days. Anyway, during “Breakfast w/the Smiths” I had my fill at the first song. So I went over to Oedipus’s site, where my old boss from “The Q” in Phoenix, Jonathan L, hosts “The Lopsided World of L.” It’s mostly new music but I liked “Retrograde” on indie 103.1.  Hearing The Police play “Murder By Numbers” is killah. I don’t like everything they do but that song is irrestible to me.

 

ITunes has ‘lost’ half my 4000 songs. I’ve bought and paid for them, but the computer says It can’t locate them. The customer service person who I had an appointment with a few weeks ago ghosted me and has ghosted me ever since.

This newspaper column, called “The Haggler” in the New York Times says he’s done a handful of Apple cases this year and that they basically blow off trouble clients and focus on the bottom line. Speaking of ‘Lines,’ I might just drop one to “The Haggler.” Apple has already abandoned me and made off with about 2000 worth of songs.

I see forums of people online having the discussion about the greyed out fields with an exclamation point to the right of the song’s name.

And yet, I’m so religious about taking my medicine!!!!

pills

After 27 years of this, it gets old. I lay out my meds in my tray, aware I’m just buying time until the antidepressants stop working and I go back to square one to find a new cocktail. I’m not easy to treat but we know what works. I stay with my ‘all cash’ shrink, even though over the years I’ve had ten second opinions (tardive will make you do that in hopes someone, anyone will be able to help) and I’m not impressed with whose out there. Especially the ALF and hospital Hacks. Even their patients don’t like them.

Anyway, I ‘forgot’ to put my Wellbutrin out for a week straight. The tray looked a bit light but I couldn’t figure it out and got distracted day in, day out. Well, it worked, I fell right back in the ditch until I figured it out.

I’m ‘over’ taking medication. You?

You won’t believe this gaffe….I’m lucky I survived

al in german dress and new earrings

 

 

The doctors think I might have an autoimmune condition called Sjogren’s disease. It’s treatable, not curable. I set up an appointment with the only rheumatology practice in my county. I waited for a month. I went and discovered I was not on the books. Now, I must wait another month.

My eye doctor prescribed something not on my insurance plan. Paperwork must be pushed. Prior authorization. No biggie, right? Wrong. Turns out they don’t do those.

The only way they’d consider it, the doctor said, is if I walked in the form myself and helped them fill it out. I called my Part D drug plan and they won’t send me a blank prior auth form. Against Policy, they say. I asked one girl four different times if she could send me the form and she didn’t give me a yes or no answer, just prattled on until I asked for a supervisor. And then another. And another. My medical records are mine. I should be able to get them sent to me return receipt, I’ll pay for the extra postage. Just send the MF’er so I can get my meds.

I’m the customer. This is Monopoly of CVS, Silverscript Part D, CVS mail order, CVS Drugstores (Hello can anyone spell Monopoly?) but where they get all their power (and profit) is as pharmacy benefit managers, (PBM’S).

They are the middlemen between pharmacy and wholesalers; cutting backdoor deals to drive customers to their stores by offering lower prices. Lots of people fall for this. It doesn’t matter if you’re rarely ill or are only on one or two meds.

I’m not in that category. With increased privatization of Medicaid and more and more private for profit Medicare ‘Disadvantage’ plans that don’t cover my University of Miami and University of Florida neurologists, quality and choice are going out the window. The small pharmacies are being driven out because the private hmo’s can make the rules.

And they didn’t even have to go to a ‘for profit’ Keiser or Trump University to get screwed. Come to think of it, neither do we.

Isn’t it funny, I tag bipolar but life’s challenges go way beyond that, I’m finding. I want to stay healthy but it takes a lot of work with all these side effects and aging.

You won’t believe this gaffe….I’m lucky I survived

al in german dress and new earrings

 

 

The doctors think I might have an autoimmune condition called Sjogren’s disease. It’s treatable, not curable. I set up an appointment with the only rheumatology practice in my county. I waited for a month. I went and discovered I was not on the books. Now, I must wait another month.

My eye doctor prescribed something not on my insurance plan. Paperwork must be pushed. Prior authorization. No biggie, right? Wrong. Turns out they don’t do those.

The only way they’d consider it, the doctor said, is if I walked in the form myself and helped them fill it out. I called my Part D drug plan and they won’t send me a blank prior auth form. Against Policy, they say. I asked one girl four different times if she could send me the form and she didn’t give me a yes or no answer, just prattled on until I asked for a supervisor. And then another. And another. My medical records are mine. I should be able to get them sent to me return receipt, I’ll pay for the extra postage. Just send the MF’er so I can get my meds.

I’m the customer. This is Monopoly of CVS, Silverscript Part D, CVS mail order, CVS Drugstores (Hello can anyone spell Monopoly?) but where they get all their power (and profit) is as pharmacy benefit managers, (PBM’S).

They are the middlemen between pharmacy and wholesalers; cutting backdoor deals to drive customers to their stores by offering lower prices. Lots of people fall for this. It doesn’t matter if you’re rarely ill or are only on one or two meds.

I’m not in that category. With increased privatization of Medicaid and more and more private for profit Medicare ‘Disadvantage’ plans that don’t cover my University of Miami and University of Florida neurologists, quality and choice are going out the window. The small pharmacies are being driven out because the private hmo’s can make the rules.

And they didn’t even have to go to a ‘for profit’ Keiser or Trump University to get screwed. Come to think of it, neither do we.

Isn’t it funny, I tag bipolar but life’s challenges go way beyond that, I’m finding. I want to stay healthy but it takes a lot of work with all these side effects and aging.

“Hey, Wait I Got a New Complaint” (Nirvana, Heart-Shaped Box) if you have health care complaints

Kurt

If someone treats you badly at a health care providers office, do you have recourse? Can you complain to Medicare or your insurance company? Medicare will send you to a division called “Quality Insurance,” but they are not regulatory.

The only thing they can do is request your medical records, which will do nothing, especially if you have a beef with someone other than the doctor.  Even if it is the doctor you’re unhappy with, he can always change your medical records to reflect stellar standard of care. Hahaha.

Not everyone at Quality Insurance will tell you this, however. I just happened to have a complaint against a big lab firm (Their name rhymes with ‘Best’ and I call ‘Worst’ who lost my blood twice and were really rude to me for three years. I thought all labs were the same. Boy was I wrong. Anyway, I followed up on my laboratory complaint as I leave in formerly called “ZikaZone” at the time and it seemed a safety issue.

I found out nothing was done, nothing was even annotated!

As it turns out, if you need to make a complaint, your only recourse is to call the state department of health, and depending on whatever state you’re in, it might have a different name.

Google “Regulatory Body for ____________” whatever specialty it is, or if it’s a pharmacy, “State Pharmacy Board.”

Isn’t that a trip?

Allison

I struggled and still struggle with weight issues re meds

allison balcony

I am writing my book and possibly have an autoimmune illness called Sjogren’s or ‘Sicca Syndrome.’ Can’t wear contacts, on these eyedrops, fatigue. I don’t have manic energy at all, which I had enjoyed. Always tired. One of the things about writing, especially a research driven book, is it’s a lot of work. I need to put in four hours a day to really make any progress. Am considering dropping my gym membership. Then I’ll go back to looking like THIS again. It takes about four months to take that extra 20 off.