You won’t believe this gaffe….I’m lucky I survived

al in german dress and new earrings

 

 

The doctors think I might have an autoimmune condition called Sjogren’s disease. It’s treatable, not curable. I set up an appointment with the only rheumatology practice in my county. I waited for a month. I went and discovered I was not on the books. Now, I must wait another month.

My eye doctor prescribed something not on my insurance plan. Paperwork must be pushed. Prior authorization. No biggie, right? Wrong. Turns out they don’t do those.

The only way they’d consider it, the doctor said, is if I walked in the form myself and helped them fill it out. I called my Part D drug plan and they won’t send me a blank prior auth form. Against Policy, they say. I asked one girl four different times if she could send me the form and she didn’t give me a yes or no answer, just prattled on until I asked for a supervisor. And then another. And another. My medical records are mine. I should be able to get them sent to me return receipt, I’ll pay for the extra postage. Just send the MF’er so I can get my meds.

I’m the customer. This is Monopoly of CVS, Silverscript Part D, CVS mail order, CVS Drugstores (Hello can anyone spell Monopoly?) but where they get all their power (and profit) is as pharmacy benefit managers, (PBM’S).

They are the middlemen between pharmacy and wholesalers; cutting backdoor deals to drive customers to their stores by offering lower prices. Lots of people fall for this. It doesn’t matter if you’re rarely ill or are only on one or two meds.

I’m not in that category. With increased privatization of Medicaid and more and more private for profit Medicare ‘Disadvantage’ plans that don’t cover my University of Miami and University of Florida neurologists, quality and choice are going out the window. The small pharmacies are being driven out because the private hmo’s can make the rules.

And they didn’t even have to go to a ‘for profit’ Keiser or Trump University to get screwed. Come to think of it, neither do we.

Isn’t it funny, I tag bipolar but life’s challenges go way beyond that, I’m finding. I want to stay healthy but it takes a lot of work with all these side effects and aging.

More words I thought were the opposite of what they mean…

AlLiliPulPinkAllison Biszantz Aka “Strong”

Here are this weeks words.

 

Prosaic…completely unromantic, commonplace. And here I thought it mean profound or prolific.

Canard…an unfounded rumor or story. (I thought it was French for Duck like you have in the restaurants..well done and crispy please)

Rapprochement: re-establishing harmonious or co operative relations…this probably releated to Brexit and EU response. That’s why I’d never seen it.

Lapidary: this is both a noun and adjective. Adjective…an engraver. Noun, something said that’s elegant, concise, deserves to be written in stone.

 

How about this one??? The innocent are haunted and the haunted are innocent?  Where’s my headstone??? Bipolar Disorder a crowded field. If all I end up being is the poster girl for the grisly side effect of Tardive Dyskinesia and related challenges like Stigma, that’s more than enough for me, thanks for reading.

 

 

Bipolar “Biggest Loser” Still Winning w/the weight off 5 yrs later.

Don’t believe the negativity in the News about “The Biggest Losers.” Sustainable life changes DO work.

allison balconyal in german dress and new earrings

2010, after starting Clozaril                                      2016 …..still at it. No fancy diet programs.

So…all the articles say…you can’t keep the weight off.  Everyone in reality show “Biggest Loser” Gained it back.  Diets don’t work. Are you Sure about that? Or are you just trying to sell a book or get an article published? I’m Allison Strong. Not only did I lose ….well, I’ll just ask you to read this article I wrote that posted today at bphope.com, Bipolar And Weight. Here’s the link:

Any click throughs greatly appreciated.

http://www.bphope.com/blog/bipolar-weight-three-sizes-of-clothes/

Metabolic Researchers Respond to my letters

Some of you may remember that I sent letters to scientists researching the metabolic challenges from taking atypical antipsychotics. Guess what? They responded and put me in touch with others.

It just goes to show that people do care and will share the information. I am putting it all together with my own metabolic healing journey and doing a series of articles on metabolic healing, diabetes prevention and maintaining a healthy weight. The idea is that this can be addressed and needs to be addressed from all angles. Diet and exercise alone often doesn’t do the trick.

You can be slender and fit and still have metabolic fallout from atypical antipsychotics.In my case the benefits of the medicine outweigh the risks.

Sharing Jewelry Making With Others in the Community

blueswarovskion

 

When I first wanted to learn how to make jewelry a few teachers told me they couldn’t work with me; frustrated at how slow I learned. Luckily for me I had a trip scheduled to see Mom in Arizona and she’s an expert. She has such fine skills. If you compare her work with mine it’s mind boggling. But that’s not what it’s all about.

Mom set up a jewelry table for me so she could rest when she needs to and I’d have something to do. She gave me the raw materials, like stones and findings that I needed. There are quite a few moving parts and tools involved. She probably spent twelve hours with me on that trip, helping me with the skills I could not wrap my mind around, like wire bending, and the making of loops to put earring findings on or other attachments. It’s got to be consistent and uniform in shape in side, otherwise it won’t hang the same and the different loop sizes will look silly.

I put up a site on Etsy and found out it’s more a place where ideas are stolen than appreciated and bought. In doing this I developed better photography skills, as the picture and description of an item are worth more than a thousand words. I spent money on lessons upon my return and also put out dough for nice stones like the above, which is Fluorite topped with embedded Swarovsky Crystal beads.

And then I got into writing and I just stopped. I’m going back. I think I need to.

 

I hate this word as a platitude or cliché but ‘balance’ is everything.

Allison