Why do I blog? I mean, really????

alblackdressmall

 

I used to be in radio, which is a commercial business that carefully calculates who they are trying to reach, how old they are, race, level of education, income, etc. My format, alternative, was aimed at 18-34 year olds, 60-40 men, mostly and women. At the time, I was in my thirties (I did this from 29-39). I knew as an employee, I’d age out sooner than later. When the ad department sells that Saturday Afternoon live remote from the car dealership, they don’t want to send out a 55 year old woman, I mean, not really.

 

The reason I bring this up in the overall discussion of why I do what I do… is I rarely blog and am even guiltier of not reading and responding to others. I hardly ever go on facebook. Twitter? Can’t be bothered, yet this is the best place to ‘reach out and touch’ someone.

 

Basically, I am looking to collaborate on an intellectual level with writers, bipolar so much the better. I’m in that phase of writing articles for magazines and the local newspapers (Miami Herald, South Florida Sun Sentinel, Bipolar Hope, etc.,) and try to figure out which books to write and which topics to include.

 

I can’t figure out if tardive dyskinesia belongs in a separate book all its’ own. What do you think?

I can’t get anyone to tell me how many of us there are.

The info I’ve dug up is of practical information to those of us who take the drugs that cause them…..those atypical antipsychotics advertised as ‘helpful for depression’ that list warnings for antidepressants so the consumer doesn’t realize they are being prescribed a cousin of Thorazine, a drug that helped a ton of people in the 52’s and emptied mental institutions. Those people could now live their lives on the outside.

The info on movement disorders caused by Reglan and antipsychotics that I can’t seem to dig up is even more interesting.

Many neuros in the field say they’ll answer questions and then blow me off.

I know why this is and want to write about it. It’s not damnning, but it’s practical knowledge we are deprived of.

I lost my grant for tardive medicine this year. It’s changed my perspective. To put it lightly.

I am just looking for feedback. But it seems like a crowded field out here. Especially when you get to the point that you are writing for all these publications demanding copy guaranteed to print….it’s hard to come back and blog, sorta.

The Opiate discussion resumes…

aquanotext

In order to swim without pain I wear this blue aqua jogger backwards as a back brace. When I turn my head to breathe, it holds my back still. About now all I can do is swim.

article in New York Times today about how in 2012, the AMA (American Medical Association) shut down a movement to make pain management training mandatory for doctors who write scrips for opiates. Why would they do that? To distance themselves from the problem and thus not be part of the solution?

I have a bad back. Once I had a failed foot surgery due to physician error. My feet had been broken and reset. I was able to work (and walk) for the three years we looked around to try to find out why my bones wouldn’t knit so they could remove the pins. How did I do it? Tylenol #4. Lots of it. When I finally healed, I got right off it. Hate the side effects.

These days, I’ve got a lot of low back herniations, annular tears and disc degeneration from professional sports and exercise bulimia. I’m in excruciating pain. I’ve had ten different types of ‘interventional’ injections to isolate the nerves that hurt and burn them up so they don’t feel until they grow back, which takes a year. Then you have to have your nerves burned all over again. We’ve never been able to have a ‘positive’ result. But we got close. I’d burn my nerves in a heartbeat not to take these meds and deal with the side effects. I use, not abuse. I take vacations to work down my tolerance. I told my doc I only take half of what he gives me and he said, ‘we’ll just keep things the way they are, the more changes, the more scrutiny.’ I was honest, that’s the main thing. And I’m waiting for the day Medicare covers the Coolief Procedure which now costs tens of thousands of dollars. It would help me. For a year. Then I’d have to do it again. I’m waiting. And waiting. And hoping CDC’s Dr Deb Houry, who thinks if we don’t have cancer that we should not have pain relief. In  Massachussets, you can only get a 7 day supply of pain meds. I hope I’m gone before these restrictions appear here in South Florida.