Last night, we finally got around to watching what I was afraid would be depressing, the Netflix bio on Nina Simone, the REAL documentary, not the one that just came out with actors.
There was a lot of black and white in her life and I don’t just mean race. Growing up in North Carolina, because her family were church goers, she had just enough access to the church piano that her gift was noticed and nourished.
She was a heated civil rights activist and the music she wrote after the Alabama Church bombings like “Mississippi Goddamn” was banned from the radio. Today, they’d do a deletion or an edit and she’d so much press that her album would have sold like crazy. But that was a different time and she was a black woman in the 50’s 60’s and 70’s.
At one point, after years of abuse and overwork (she was the breadwinner and her ex-cop wifebeater husband her manager) she just broke down. You could see in her eyes that she was disaffected, disconnected…depressed and dead inside.
They took her to Switzerland in the 60’s and put her on Trilofon, an antipsychotic. What interested me about that was back then they knew and warned her about tardive dyskinesia…changes to her gate, neurological twitches, and the impact it would have on her kidneys. But she recovered….it did affect her creativity and improvisation with varying genres of music, she wasn’t as wild with her art. But she was happy again. And she lived to be 70 in the South of France, financially self sufficient and as she put it, ‘free.’
There was an article that interviewed editors of many prominent newspapers about the fate of investigative journalism. Because print publications are converting into the more ‘now’ digital news, the instantly breaking kind of stuff, for a publication such as The Boston Globe or The New York Times to devote dollars for staff to conduct long-term investigative research into local issues or problems is up in the air. Though the article said that the New York Times is still dedicated to this public service, and a few others in the Midwest and Washington too, this public service: letting the public know about local crises covered up by corruption, abuse of power, the clout of churches, etc, is at risk.
As consumers, I think we need to keep supporting publications that provide that. That’s why I have a seven day a week print subscription to the New York Times and Read it every day. That’s where I hear the skinny on exactly WHY certain generic medication’s prices have risen by 4000%. How and Why that happened.
It’s happened to me.
You would think that people in the business of helping sick people would want to. I wrote this letter to Mayo Clinic, (who is not taking on new patients) to get on a waiting list and got no response. Color me surprised!!!
My name is Allison Biszantz. I am writing you to request an appointment. I recently read the book “The End of Illness” which mentioned genetic and enzyme testing which might benefit me.
I am 54-years-old and live in Hollywood Florida. I am on disability and am a writer for Nami local, Nami.org and International Bipolar Disorder. I was a disc jockey and medical transcriptionist for the first ten years of my diagnosis. Before that, I went to Stanford on a Volleyball scholarship.
When I was 29, I had a full blown manic episode went to 60 day neuropsych at University of Utah and was dx with bipolar 2. In 2000 Bipolar I and antipsychoticws. In 2007 Tardive Dyskinesia, (very well managed with 2.5 mg Xenazine and 50 mg Clozaril, although it took three years to find a solution and many appts.)
I’m Bipolar with ADHD, currently dealing with depression and running out of options. I’ve had the same doctor for fifteen years and I’ve stayed out of the hospital all that time. My doctor does not want to deal with the Mayo ‘Standard of Care’ Cytochrome P450, CYP2D6 or CYP2C9 testing and I am looking to find a doctor who is willing to do that test for me and consult with me. I’m willing to travel. Or be referred to someone in my area if you know someone.
I want to write a series of pieces for IBPF about this cutting edge science and how it might be helpful to someone with bipolar disorder.
Would you be willing to help me? I’m willing to provide more info if you request it.