I’m taking a note out of Prince’s Playbook: Methadone Light

 

prince

‘Boy Could He Play Guitar’  David Bowie “Ziggy Stardust.”

There are big barrier to Methadone light. First of all, Suboxone, which is what they give, is an opiate. Secondly, if the word got out about this better, much safer from overdose type of treatment, the jig would be up and Purdue, Endo and the rest would lose millions of dollars on something that’s killing us.  Very few of us afford it and if falls underneath the umbrella diagnosis code of opiate addiction, not something everyone wants to admit to. Oh, well. A few courageous docs are doing it while others tell me it’s illegal. The truth is somewhere in between.

I’m not suggesting Buprenorphine (as available as Suboxone) is without risk But has a ‘ceiling effect’ on Euphoria and respiratory depression (read: Overdose).

After a ton of phone calls I got an apt and detail wise, the sublingual film goes under the time. Go bye bye alcohol, benzos and all other drugs. I paid 12.00 for my first patch.

I had my first film last night. I had few good hours and then rebound pain so awful I told my husband that If I died in the morning that I was sorry. I think the dose might not be high enough.

More on this later.

More on Prince ; Buprenorphine Mystery my note 2 Cornell MD

princetwoBelieve me, you’ll know as soon as I know.

There is this guy in our daily paper who offers answers to questions. I wrote my questions about buprenorphine. I can never get the spelling right.

One of the articles about Prince’s death dealt with the stigma of using one drug to treat a problem with another. But if he really had ruined his hips and was in pain, then he’d have needed pain care. You want to know what I think? He didn’t know who to trust. It’s tricky. You’ll see in this letter that I don’t know who to trust either.  So I wrote this guy at Cornell. I keep looking for more stories on this subject but can’t find any. Is there some conspiracy theory I’m unaware of? Could big pharma be THAT big to get in the way of generic 40 dollar a month w/o insurance priced Subutex? It’s been FDA approved for chronic pain since 81 so what’s the big issue with it? So I wrote a letter to this Cornell ‘ask the doctor’ newspaper guy at ‘ToYourGoodHealth@med.cornell.edu. If you want to know the deal as badly as I do and you never see his answer posted in my blog, feel free to ask him again these questions..It’s a public concern and a growing epidemic that some say could be solved with Suboxone, Bupenorphrine. Why Not? Why?

Dear Dr. Roach

I’ve had chronic lumbar pain for a decade. It’s impacted by a neurological condition called Tardive Dyskinesia that’s similar to Parkinson’s. I have uncontrollable muscle spasms and yelp. I’ve had every interventional pain management injection available and have spent thousands on physical therapy, pilates, herbs, eat an anti inflammatory diet, have done chiropractic, massage and acupuncture. I use mindful meditation while listening to music to. Still,  I need my meds. And hate that.

I don’t take short actings. I’ve made days-long medication ‘vacations’ to work my tolerance/dose down to 1/3 of what it was a year ago.  Even at a lower dose, the constipation is unbearable. Even on an all raw foods diet.

After a few ortho surgeries I’d been on high dose synthetics like Demerol and I had no constipation. When Prince died I read about the use of buprenorphine for chronic pain at the California “Recovery Without Walls” clinic. The use of a sublingual patch, a different way of taking it puts less strain on the liver and kidneys as they don’t have to metabolize it.  The few shreds of coverage I read in the Washington Post and said Bupenorphine  received FDA approval for chronic pain back in 1981. Yet one article about a D.C. based doctor recounted how she’d had to falsify patient’s diagnoses in order to get them treated and off of opiates for good. That’s what I want. If these synthetics truly are the second coming for long term noncancerous pain (Claimed by the newer “Butrans” transdermal patch) with a lower side effect profile and a ceiling on respiratory effects and overdose potential, why do the doctors using it claim there have been ‘challenges and conflicts’ preventing its’  widespread availability and use?

Why do some local doctors (often trained in other countries) insinuate that bupenorphrine would help my chronic pain while other doctors angrily claim it’s illegal to use it for that purpose? What are the downsides to this medication that I’m not hearing about? Allison Strong Hollywood Florida 954-922-4310

biszanta@hotmail.com

 

More on Prince & Buprenorphine Mystery my note 2 Cornell MD

princetwoBelieve me, you’ll know as soon as I know.

There is this guy in our daily paper who offers answers to questions. I wrote my questions about buprenorphine. I can never get the spelling right.

One of the articles about Prince’s death dealt with the stigma of using one drug to treat a problem with another. But if he really had ruined his hips and was in pain, then he’d have needed pain care. You want to know what I think? He didn’t know who to trust. It’s tricky. You’ll see in this letter that I don’t know who to trust either.  So I wrote this guy at Cornell. I keep looking for more stories on this subject but can’t find any. Is there some conspiracy theory I’m unaware of? Could big pharma be THAT big to get in the way of generic 40 dollar a month w/o insurance priced Subutex? It’s been FDA approved for chronic pain since 81 so what’s the big issue with it? So I wrote a letter to this Cornell ‘ask the doctor’ newspaper guy at ‘ToYourGoodHealth@med.cornell.edu. If you want to know the deal as badly as I do and you never see his answer posted in my blog, feel free to ask him again these questions..It’s a public concern and a growing epidemic that some say could be solved with Suboxone, Bupenorphrine. Why Not? Why?

Dear Dr. Roach

I’ve had chronic lumbar pain for a decade. It’s impacted by a neurological condition called Tardive Dyskinesia that’s similar to Parkinson’s. I have uncontrollable muscle spasms and yelp. I’ve had every interventional pain management injection available and have spent thousands on physical therapy, pilates, herbs, eat an anti inflammatory diet, have done chiropractic, massage and acupuncture. I use mindful meditation while listening to music to. Still,  I need my meds. And hate that.

I don’t take short actings. I’ve made days-long medication ‘vacations’ to work my tolerance/dose down to 1/3 of what it was a year ago.  Even at a lower dose, the constipation is unbearable. Even on an all raw foods diet.

After a few ortho surgeries I’d been on high dose synthetics like Demerol and I had no constipation. When Prince died I read about the use of buprenorphine for chronic pain at the California “Recovery Without Walls” clinic. The use of a sublingual patch, a different way of taking it puts less strain on the liver and kidneys as they don’t have to metabolize it.  The few shreds of coverage I read in the Washington Post and said Bupenorphine  received FDA approval for chronic pain back in 1981. Yet one article about a D.C. based doctor recounted how she’d had to falsify patient’s diagnoses in order to get them treated and off of opiates for good. That’s what I want. If these synthetics truly are the second coming for long term noncancerous pain (Claimed by the newer “Butrans” transdermal patch) with a lower side effect profile and a ceiling on respiratory effects and overdose potential, why do the doctors using it claim there have been ‘challenges and conflicts’ preventing its’  widespread availability and use?

Why do some local doctors (often trained in other countries) insinuate that bupenorphrine would help my chronic pain while other doctors angrily claim it’s illegal to use it for that purpose? What are the downsides to this medication that I’m not hearing about? Allison Strong Hollywood Florida 954-922-4310

biszanta@hotmail.com

 

The answer to all life’s problems: Buy a juicer!

My Peer Mentor is very well intentioned. Thanks to him, I have finally discovered the ultimate cure and solution to my chronic pain and all life’s other challenges as a bipolar person with tardive dyskinesia: Buy a Juicer! Yes, folks, it’s that simple.

At a Behavioral Health Center nearby, I have a WRAP plan and goals that I discuss with my mentor. I was in a depression relapse and having problems with back pain. It’s a lovely center but after I got tardive dyskinesia and fell off of their volunteer rolls, they deemed I am no longer ‘stable’ enough to be a volunteer. This can only mean that God wants me to spend my time writing.

I’ve struggle with exercise bulimia my whole life. I’ve had more surgeries than an NFL linebacker, all in search of the body beautiful, which I thought would overcompensate for my other problems. Some mornings my back pain on a scale of 1-10 is an 8, really burning up, man. I use ice packs, Mobic, a Lidocaine patch and the occasional pain pill when life demands it. I can’t handle being all laid up. I’m only 54. But you know that these centers and mental health professionals in general think that if you have a mental illness, you should not be given controlled substances. You’ll become an addict!!! I have news for them. I already am an addict!!! That fact was established in the 80’s with cocaine. One I started I could not stop. That doesn’t mean that applies to Benzos and Pain pills. I am very conservative in my use,,and if they knew how many extras I have, it would  make them very nervous and they’d cut me off.

Well, anyway, this is not stuff I share with my Peer Mentor because he’s already trying to be subtle about his absolute anti stance on pain medicine. He must never have gone through what I go through. Of course not, he’s not exercise bulimic, isn’t a former professional athlete and a weight freak. I’m on an anti-inflammatory diet, anti-inflammatory herb and drink tons of water. My Peer mentor didn’t think I was doing the right things for my low back, which is degenerated, herniated and has an annular tear they can never repair. The edges of it hit the nerves and..

“I have a great idea,” he said, “Have you ever looked into nutrition for pain relief?” I thought I already was. “I think you should buy a juicer,” he exclaimed. Dumbfounded, I could only nod in assent. I was laughing or crying inside, not sure. Now I see the light!!!

I’m confused though. I was already eating celery, radishes, kale, carrots, beets, lettuce, arugula and cabbabe in my daily salads, with avocado and that crunchy little white root vegetable, Jicama. How would juicing make my life suddenly transform. How will all the structural problems in my spine just disappear? Is it something in the noise of the blender? Please, Please, get back to me on this. Let me know and send me the links and other info on the best juicer for bad backs!