Looking for other tardive patients for a movement disorder project…a free online pamphlet filled with facts.

gainesvilletwoWe went to Gainesville to see my neurologist, the one who finally fixed the tardive dyskinesia, a side effect of antipsychotics.

 

I’m going after a huge undertaking, writing a book of my journey with tardive, the docs I saw (you would not believe some of the stories) the ER visits, the 8 mo disastrous titration off Seroquel that only made my symptoms explode (withdrawal emergent syndrome) and the whole lot of it.

How many people have this anyway? Who would know? I am lining up my sources and looking for input. What questions are answerable? Should I ask for a quote?  I’m just trying to do the right thing and prevent others from living the same three year marathon nightmare that I did. If you know anyone who is twitching, grimacing or thrashing, send ’em my way. bipolarbrainiacSFL@Hotmail.com

 

I

Picture from Gainesville with fill light from the Lake behind me! Looking for other tardive patients

gainesvilletwoWe went to Gainesville to see my neurologist, the one who finally fixed the tardive dyskinesia, a side effect of antipsychotics.

 

I got it from Geodon. I’m trying to find out if there are any other people in my situation. If you know any, can you send them my way? I’m working on a project where I tell people what their chances are, tips on prevention, treatment and current medical thought. Having had it since 2007 and searching for symptom relief (I couldn’t drive or sign a check or fall asleep for three year…a total nightmare) It’s a lot like people who get bipolar disorder and have a three year period during which they tried everything. This is a good photo because there was a lake across the way, right below me and the light came from below, filling in my roadmap of a face!!!  In Hollywood I think that’s called a “Kleig Light” or something like that. We shot pictures forever. It was so fun.

90’s Film “Swimming With Sharks” w/Kevin Spacey

spaceyswimsharkskevinsharks

It’s “Shark Week.” And I’m back out in the water, crawling my 1 1/2 miles with a back brace on to prevent me from aggravating my spine twisting my torso too far when I turn right and left for a breath of air.

Little by little, we lose things we love and adjust, accept and move on. I’m the worst, constantly trying to ‘have iot all,’ as my health deteriorates. lololol! I need to go back to AA and practice “Acceptance” and  “Life on Life’s Terms.” Did those faces trigger or seem punitively grim to anyone else? Or am I the only one?

 

Anyway, movies like these, (and I’ll bet you never heard of “Swimming With Sharks),” helps me with chronic pain. Maybe cuz it’s my favorite topic: Hollywood Studios and the machinations taking place behind the walls.

It was an indie film and did not get wide distribution. I lived in LA when it came out and also when the film “Affliction” was released, featuring Nick Nolte, Willem Dafoe, Sissy Spacek and the late James Coburn.  Family alcoholism and mental illness passed on and one in a small town in Maine. The bitterly cold climate was a perfect counterpoint to the simmering rage between brothers over ‘who fucked up the worst’ similar to Bloodline. These are Indie films with A-listers.

What does that tell you about Hollywood, Money And Power?

 

I taking on the ‘powers that be’ trying to address a side effect of antipsychotics that’s mostly covered up.

It’s a movement disorder. I have it.  If I say what, I’m afraid you’ll split. But it’s important. It may be rarer than we thought but it’s real. People at risk or showing early signs need to know.

Deal? Help me? Click and/or comment on this little story if you think we can help each other…. and I’ll find out who you are and we can talk about whatever. On WP, we do that, or at least that’s my experience.

http://www.bphope.com/blog/bipolar-mood-cycles-stop-fighting-and-win/

Are both the Horse and the Bipolar Rider off Their Meds? Tox screen?

horseFind out about the fiery, lifechanging intersection of  a ‘headless horsewoman’ and a nasty nag NOT on his Vitamin K.  (And what the tox screen revealed)

http://www.bphope.com/blog/bipolar-strong-rough-horseback-ride-restarts-bipolars-recovery/

Always hoping for curiousity clicks and comments. Support of stories much appreciated. Writing is what I do.

A ‘clickthrough’ is all I really am asking for but the story is really kinda funny.

Horse off his ‘Vita K’ and Bipolar off her meds meet and go boom!

horseFind out about the explosive intersection of  a ‘headless horsewoman’ and a nasty nag NOT on his Vitamin K.  (And what the tox screen revealed)

http://www.bphope.com/blog/bipolar-strong-rough-horseback-ride-restarts-bipolars-recovery/

Also on Facebook “bipolar magazine facebook page” under “Bipolar Strong: Rough Horseback ride kickstarts bipolar’s recovery.”

Always hoping for curiousity clickthroughs and comments.