Genetic testing for antidepressants ‘standard of care’ at Mayo Clinics

Prelude: there is genetic protein testing available and is the ‘standard of care’ at Mayo Clinics since 2011 and is covered occasionally for medical reasons. It could really benefit a person who needs antidepressants.  We all know that different meds work differently in different individuals. But do we really have to try a bunch of meds and sit around contemplating our own demise for weeks on end to find out? for example, on Prozac, it took me 8 weeks for me to feel better. A lot of bad stuff could have happened to me. So I called Mayo Clinic and they said they are not accepting new psych patients. I am not to be deterred. I am the girl who got cut from the high school volleyball team two years in a row and ended up with a scholarship to Stanford. Determination has paid off in radio, medical mysteries requiring multiple letters written etc. So here’s my campaign to get an appointment. laying odds? 50-50. What’s there to lose? It’s not as if I have no time.

My name is Allison Biszantz. I am writing you to request an appointment. I recently read the book “The End of Illness” which mentioned genetic and enzyme testing which might benefit me.

I am 54-years-old and live in Hollywood Florida. I am on disability and am a writer for Nami local, Nami.org and International Bipolar Disorder. I was a disc jockey and medical transcriptionist for the first ten years of my diagnosis. Before that,  I went to Stanford on a Volleyball scholarship.

When I was 29, I had a full blown manic episode went to 60 day neuropsych at University of Utah and was dx with bipolar 2. In 2000 Bipolar I and antipsychoticws. In 2007 Tardive Dyskinesia, (very well managed with 2.5 mg Xenazine and 50 mg Clozaril, although it took three years to find a solution and many appts.)

I’m Bipolar with ADHD, currently dealing with depression and running out of options. I’ve had the same doctor for fifteen years and I’ve stayed out of the hospital all that time. My doctor does not want to deal with the Mayo ‘Standard of Care’  Cytochrome P450, CYP2D6 or CYP2C9 testing and I am looking to find a doctor who is willing to do that test for me and consult with me. I’m willing to travel. Or be referred to someone in my area if you know someone.

I  want to write a series of pieces for IBPF about this cutting edge science and how it might be helpful to someone with bipolar disorder.

Would you be willing to help me?  I’m willing to provide more info if you request it.

954-922-4310

biszanta@Hotmail.com

@bipolarbrainiac

I got clobbered by my good intentions at the mental health ‘drop in’ center!!!

I’ve hit a snag with mental health advocacy. I volunteered for years at the nearby drop in. I had high security clearance and brought meetings into the psych ward. I developed an eating disorder meeting for them. I got sick with depression and a three year struggle with trying to get Tardive Dyskinesia under control…with both conditions I couldn’t volunteer for about a year  and I fell off the volunteer rolls. Well again, well, well enough, I offered to bring a gentle Pilates Mat class and even get certified in group activity safety measures for them and for me. Well, as you can imagine, since the whole ‘story’ I tried to nicely write about them went south, they no longer think I’m ‘well’ enough to be a volunteer.

Despite this, I still tried to write a nice story about them and their services for International Bipolar Disorder. I interviewed the project director and took good notes. I gave her final editorial approval since I did want to quote her and wanted to improve our relationship. I guess I sent too many emails because as my deadline came and went, she was on vacation and I did not know. When she returned, I got a nasty email full of hypocritical ‘mindfulness’  telling me that her ‘intention’ is to show me kindness but I make it impossible by ‘bombarding’ her with emails. My deadline for the story had come and gone and I wanted to finish it. She works with the mentally ill so why should she expect so much out of me? Am I being discriminated against because I’m too high functioning? Let’s face it, I’m verbal, I’m not all doped up and docile and I ask questions. I try to express myself and spread the good news about treatment options, present and in the pipeline. And you would not believe how much is in the pipeline!!! Ketamine is a comin’!