Are you at risk of Tardive Dyskinesia? Find out now.

You know that rapidly rattled off disclaimer “Call your doctor if you experience involuntary repetitive movements as these are serious and may become permanent.”

No shit, Sherlock. This International Bipolar Disorder Story has some of the stuff the doctors won’t tell us. The TD causing meds developed for schizophrenia are now being used for mainstream, run of the mill, non mental ill concerns such as anxiety, adhd, insomnia, cancer and anorexia (stimulate appetite) depression, and bipolar disorder, so you might be on one of the drugs that’s whitewashed as something else and be at risk. The drug companies don’t exactly advertise they’re selling reformulated Thorazine. Antipsychotics.

Be safe. Be sure.

http://ibpf.org/blog/tardive-dyskinesia-decade-later

Allison

Are you at risk of Tardive Dyskinesia? Find out now.

You know that rapidly rattled off disclaimer “Call your doctor if you experience involuntary repetitive movements as these are serious and may become permanent.”

No shit, Sherlock. This International Bipolar Disorder Story has some of the stuff the doctors won’t tell us. The TD causing meds developed for schizophrenia are now being used for mainstream, run of the mill, non mental ill concerns such as anxiety, adhd, insomnia, cancer and anorexia (stimulate appetite) depression, and bipolar disorder, so you might be on one of the drugs that’s whitewashed as something else and be at risk. The drug companies don’t exactly advertise they’re selling reformulated Thorazine. Antipsychotics.

Be safe. Be sure.

http://ibpf.org/blog/tardive-dyskinesia-decade-later

Allison

I’m the Worst Blogger in the World and Now, I need Help

I’m Allison and Have Bipolar Disorder, Chronic Pain, Tardive Dyskinesia and possibly Sjogren’s syndrome. (I find out today on the Sjogren’s…genetically, it makes perfect sense).

I’m in bipolar depression relapse, which is awful. I had a great 2 1/2 years of remission.

Over the course of the last 17 years I’ve had perpetual, off and on med burnout, which has a very geeky name, Antidepressant Therapy Tachyphylaxis, which means the antidepressants just stop working. I think a lot of people have this problem but there’s a black void where knowledge should be.

Articles on it, and other names for it, like “Prozac Poopout” are all over the internet. In the past we’ve resolved it over time by cycling to newer meds. Pristiq, then Viibryd and finally Brintellix, (now called Trintellix) and then Fetzima, which didn’t work.

Two different times we used Trintellix, which worked for a few years, and needed to be discontinued and then worked again when we ‘recycled it.’

I’m worried. I think I’ve burnt out all the drugs that act on Dopamine, Serotonin, Norepinephrine and need to go to a different class like a tricyclic or MAOI. The fact that I have Tardive Dyskinesia reduces our treatment options greatly.

I think it might eliminate an MAOI, because monoamines factor into TD…in some way.

I’m just really scared.

Comedy as Therapy

gainesvilletwo

 

Even if I’m the only one to get the joke. It still works wonders. There is this guy who blogs for bphope.com, where I blog. His name is Dave Mowry and he self published a  book “No, Really, We Want You To Laugh” and it’s about a movement called SMH, “Standup for Mental Health.”

So the next thing I know, I’m going through my pile of ‘possibles’ possible stories, and marking some of them with a big black sharpie H, for humor. Then I wrote a humorous blog for my editor. She did NOT get the joke. It was called “Bipolar Disorder: I’ll fight your battles if you fight mine” and I had this one bit about how we all have different brain chemistry. “If I take your antidepressant, it might put me to sleep! I love sleep. It’s especially helpful when I’m operating heavy machinery, like my tractor.

” I’ll have to see how your antidepressant affects me before I text on my cell,” My publisher was NOT amused. I still think it’s funny, I just don’t know what to do, how to retool and resend it somewhere.

Any ideas fellow writers?

Radio show “Breakfast With The Smiths” (I barely survived…and I’m a Smiths Fan)!

girlstogehterInstead of a picture of Moz, you get to see who owns us, who rules our world. They been thinkin’ outside the box lately. No reason, really. Getting older. Medicine from the Vet.

I listen to ‘indie 103.1, a podcast out of la using the handle of a former alternative radio station. I write during the morning of most days. Anyway, during “Breakfast w/the Smiths” I had my fill at the first song. So I went over to Oedipus’s site, where my old boss from “The Q” in Phoenix, Jonathan L, hosts “The Lopsided World of L.” It’s mostly new music but I liked “Retrograde” on indie 103.1.  Hearing The Police play “Murder By Numbers” is killah. I don’t like everything they do but that song is irrestible to me.

 

ITunes has ‘lost’ half my 4000 songs. I’ve bought and paid for them, but the computer says It can’t locate them. The customer service person who I had an appointment with a few weeks ago ghosted me and has ghosted me ever since.

This newspaper column, called “The Haggler” in the New York Times says he’s done a handful of Apple cases this year and that they basically blow off trouble clients and focus on the bottom line. Speaking of ‘Lines,’ I might just drop one to “The Haggler.” Apple has already abandoned me and made off with about 2000 worth of songs.

I see forums of people online having the discussion about the greyed out fields with an exclamation point to the right of the song’s name.

I struggled and still struggle with weight issues re meds

allison balcony

I am writing my book and possibly have an autoimmune illness called Sjogren’s or ‘Sicca Syndrome.’ Can’t wear contacts, on these eyedrops, fatigue. I don’t have manic energy at all, which I had enjoyed. Always tired. One of the things about writing, especially a research driven book, is it’s a lot of work. I need to put in four hours a day to really make any progress. Am considering dropping my gym membership. Then I’ll go back to looking like THIS again. It takes about four months to take that extra 20 off.

Actually doing the work (writing)

anglemegyn

I’m working on a book that’s before its’ time. Tardive Dyskinesia, (soon to be ACRONYZED as TD) It’s centrist and slightly comic as the subject matter is really heavy stuff.

I want it to be an ebook that can be updated when new resources (charities) or new meds or clinical trials become available.

My first 6 chapters are done but there’s a lot of repetition because of memory issues. The truth is I want to get this over with so I can write my ‘main’ story. Or maybe this should be folded into my main story? I just don’t know what I’ve got until I do the work.

Can you just put something like this on your blog? So people can find it when they need to?