Deplaned for ‘whatever’ reason story got picked up Psych Central

 

I wonder if this link is live. I wonder if I am alive. Today I worked tons of hours on my book. Then, by accident, I stumbled upon someone listed in someone else’s book that I was looking for. It has to do with this organization, similar to “Dr’s Without Borders,” but the hinterlands these Americans go into are the Appalachians.  They provide free medical to the people who can’t afford it, which is pretty much everyone. I just hope they don’t get detained at the airport. The way it’s going, it could happen to anyone, anytime.

https://psychcentral.com/blog/archives/2017/08/13/bipolar-woman-targeted-flagged-dragged-and-deplaned/

 

 

Going to see former Steely Frontman, Donald Fagen

Total Prince of Pathos….

“At night you hide from the madman you’re longing to be. But it all comes out on the inside, eventually” (Here at the Western World)

“Thelonius My Old Friend, Come on IN and let me shake your hand. So glad that you’re here again, for one last time, Let your MADNESS run with MINE”

Tuesday night, the 8th, at the Fillmore, Miami Beach. I have loved this band and Donald Fagen’s solo work for over twenty years. The appeal of their pathos never fades away. So now, I’m going to acquaint myself with his newer work. He has a new album out…something ‘condominiums’ I think it’s ‘Sunken Condominiums’ I’ll find out.

Punk Rock ‘Three Chords and The Truth?’

I heard about an artist, Colleen Green, who says her work is ‘Ramonesque’…i.e., The Ramones. I find stuff like this in the New York Times on the stairmaster at the Y.

Last week, on Sirius’ ‘Guns and Roses Channel,’ I heard all kinds of good stuff that I want to purchase and record. Also heard really good stuff on Jonathan L’s “The Lopsided World of L” Mersey Radio, Liverpool, England.

Jonathan is a former employer of mine at Radio station KFMA and ‘The Q’ both Phoenix, Arizona. You gotta know when someone hires you twice, you have worth in their eyes. This has nothing to do with Bipolar Disorder or Tardive Dyskinesia….it’s what I do to get out of depressive phases, like the one I’m in right now.

The Time is at Hand for a Agent/ Publishers search.

Writers…this is not a promo or commercial for my book. It’s writer’s musings while writing first draft.

 

All I want is for my story and the ballpark but the consistent consensus of my 10-neurologist ‘brain trust’ on answers to things like ‘What are my chances of getting this?’ to get out there.

I didn’t want to put pressure on myself by going after an agent/publisher before the first or second draft of my book  was written w/bibliography and footnotes.

I didn’t graduate from Stanford and sure didn’t major in English Lit which would have helped. I did, however, take a boatload of journalism classes and still have the notes.

From research I learned Tardive Dyskinesia is not only a side effect of antipsychotics but EVEN antidepressants, ADHD meds, Lithium, Depakote too! All these meds are good, solid meds..I’m not demonizing them. That’s been done to death.

Just like the opiate epidemic, it’s not really about the drugs…..it’s the suppression and lack of knowledge.  Just like the opiate war, it’s not a battle to be won overnight.

This is the first book on this side effect. It is or will become an important general health issue.

Tardive Dyskinesia ‘prevalence’ doubled in the space of three years. 500-700,000. No longer an ‘Orphan’ disease.

I didn’t exactly know the content and flow until I started working on my bibliography., (Which presently is 20 pages long).

What I have now is a halfway done first draft, footnotes and 3/4 done MLA bibliography with another new thing I learned ‘Department of Index’ (DOI) links.

.But the book still feels like ‘All Talk.’ I want it to be ‘for real,’ a deal sealed w/academic or indie press. I truly don’t want to self publish a shoddy book. I’m in over my head. I will if I have to……but gosh….I could just put it on my blog like I’m doing now.

I wish for a paperback to be available so people can hold it in their hands and see they are not alone.

I see the support I need to perfect things like formatting, developmental editing, punctuation and form of my bibliography, (which includes books, websites, dates of retrieval and press releases)… cover design, legal vetting, promotion and distribution….yada yada.

I know I need a partner.  Let other people help me out of their own self interest.  Either a pharmaceutical company pamphlet or a renegade book published by an indie or academic press. Royalties go to a 501C.

There are many people who would like the world to be better educated on the permanent side effect of Tardive Dyskinesia, a  61-year-old syndrome that’s been bullied into the broom closet because it’s scary to think about, affects patient compliance and overall, very bad for the lucrative antipsychotic business.

 

Why I’ve been Dark…..

Yeah, I’m writing a book on my favorite topic, a cause so crying out for coverage I can’t stand it. It’s inflammatory, political. Side effect not sickness. Something (a product) causes it. Or supposedly does. (I’m open to other theories. You know how quickly medicine changes).

The topic I wrestle (or wrestle) with the most is Tardive Dyskinesia, a side effect of antipsychotics. It’s gaining traction on Television with “The Good Wife’s” Michael J Fox’s character, Louis Canning, who has TV, or the ‘patient/perp’ storylines on “Law and Order.” TD comes up there in a clarion call crying out that for the mentally ill in the criminal justice system, justice can never be served. Well, it can get dicey out here on the outside of penal institutions as well.  It’s just that no one wants to hear about it just yet.

 

Mentally healthy people get prescriptions for Antipsychotics. In 2015, 60 million RX’s for antipsychotics were written, (according to QuintilesIMS, a global tech and data solutions provider for the healthcare industry.

These drugs are helping, it seems, everything under the sun, from anorexia to insomnia, OCD and anxiety. Who doesn’t want to feel better, right? I take one myself.

 

 Glowingly ‘madvertised’ on TV with enervating names that suggest Results (Rexulti) The World is Your Oyster (Geodon) Able again, (Abilify)….and that’s fine. These are good drugs and certainly an improvement over the mood stabilizers that ruined people’s kidneys. The thing is…they work so fast and so fully we forget to check the flip side. And there always is one.

 

If you are having uncontrollable movements and think you might be on one of these drugs….there’s finally an FDA-approved treatment for our 55 plus year old, long neglected syndrome, Tardive Dyskinesia. Another one, a second, (when it rains it pours) is supposed to be FDA-approved (or not) on August 30th.

I’m going to try one.

If YOU think you need a TD specialist, as opposed to a TD ‘Denier’ to check you out (and there are TD ‘Deniers’ out there, sad to say), here is a state-by-state link.

 

Hopefully, it will help you out. And yeah, I’m still bipolar…pulled out of my last ditch in March. I think DBT skills really helped. More on that later.  It’s good to be back.

http://www.lifescript.com/doctor-directory/condition/n-neuroleptic-induced-tardive-dyskinesia.aspx

 

 

Are you at risk of Tardive Dyskinesia? Find out now.

You know that rapidly rattled off disclaimer “Call your doctor if you experience involuntary repetitive movements as these are serious and may become permanent.”

No shit, Sherlock. This International Bipolar Disorder Story has some of the stuff the doctors won’t tell us. The TD causing meds developed for schizophrenia are now being used for mainstream, run of the mill, non mental ill concerns such as anxiety, adhd, insomnia, cancer and anorexia (stimulate appetite) depression, and bipolar disorder, so you might be on one of the drugs that’s whitewashed as something else and be at risk. The drug companies don’t exactly advertise they’re selling reformulated Thorazine. Antipsychotics.

Be safe. Be sure.

http://ibpf.org/blog/tardive-dyskinesia-decade-later

Allison

Antipsychotics…..all different, I found out by experimentation

tiarawithoutsilver 001 I’m not bashing atypical antipsychotics..compared to the alternative mood stabilizers they are cleaner  …..antipsychotics are great.

Don’t get me wrong. I wouldn’t give up my Clozaril for a minute. Even though it requires monthly bloodwork.

But there are ways to take your medicine judiciously and reduce your odds.

This picture was taken back in the day when I was on Geodon, not the right drug for me. It made me more manic. Then, Abilify, which is said to be ‘helpful for depression,’ made me depressed!  I told my doctor and he shhshsed me. Did you know that psychosis is a side effect of discontinuing antipsychotics?

When I finally got off of Abilify, I was hearing voices again.  Mercifully, it was during a hurricane, so it was normal for the shutters to be closed and the house dark. I was psychotic the first three days. That’s a side effect of trying to get off antipsychotics, I found out.

Antipsychotics block D2 (dopamine receptor) and after a while, the D2 receptor, wanting what it’s been deprived of, become increasingly sensitive to even the least little bit. That’s when movement disorder occurs. If I’d just stayed on Seroquel, I think I would have been ok.

The reason I say this is when my shakes showed up, I was on Geodon. I had no idea I’d even been on antipsychotics. In clinic, We went back to Seroquel and my symptoms disappeared….for a year.

Then we put me back on a ‘weight neutral,’ Invega.

The shakes came right back. We went back to Seroquel and they lessened.

You probably aren’t interested in this stuff, but believe me, with tens of millions of Americans don’t even know they are taking relatives of Thorazine. Their likelihood of getting TD, (according to NAMI and MHA)is 30-50% after long term exposure (and these drugs are meant to be taken for life). They are not bad meds, but lower doses and nutrition are just two of the ways people can reduce their risk. But if they don’t even know, like I didn’t, how can they think preventatively?

Computer wierdness

horse

What’s going on?

I was responding to an email and it just slipped away. I have to ask the sender, (a high -level neurologist I don’t want to pester) to resend. It’s not in deleted, sent, drafts…

Then I went to Tumblr and when I hit ‘post’ it wouldn’t post. It just quivered up at the top. I don’t know what the issue is.

Then, some days, my ‘attachment’ function works simply and easily, while other days I have to drag and drop and then on the worst days, I can’t do either and I have to put my stories in the body of the email.

I lost my grant for Tardive Medicine which makes me angry because the manufacturers of the agent that caused it should chip in at my extra expenses. I’m working on the chapter of the book “Where to Turn.”

Good Question. At least Google still works!