Beware, Be careful, if you do a search for tardive dyskinesia, there’s a ton of disinformation and misinformation.
I’m writing a centrist book on it…cause, risk factors, studies, promising new treatments,..how to get symptom management w/o wasting your time with self-claimed Tardive Specialists who don’t have a CLUE…I went through a lot and don’t want anyone else to. In fact, if it weren’t for all those doctors who said, “It’s psychosomatic,” or ‘You’ll Never Get Better, Suck it Up’ or…’You shouldn’t take the Valium,you might get hooked” or simply, ‘I have nothing to offer you,’ the book might never have been written.
I learned so much. Our numbers have doubled since I began my research two years ago. It’s still pretty rare though. That doesn’t mean our suffering is any less. you can’t measure misery. Don’t even try.
And as for finding and trying to talk with other patients,…there are some very damaged people. They are angry. Rageful.
Some of them have no symptom relief…their lives are decimated. They want to get even. With the world.
In the following case, I took a few blows to the skull before removing myself from the situation.
There is this one guy who is doing a facebook page based completely on his lawsuit.
He’s suing AstraZeneca (Seroquel), asking for punitive damages of 129 million. And that’s just for him. One person.
He thinks Seroquel is poison.
He’d managed to attract a famous lawyer.
The lawyer bailed.
Now I know why.
This guy called me a “Troll.” I’d never heard that term so I asked him what he meant.
He said he wasn’t feeling well that day. I tried to forget and move on.
Then, he gave me all his personal info, asked me to read every single post on his ‘tardive dyskinesia lawsuit’ facebook page and then write articles on and about him and his lawsuit…I write for three bipolar related publications. He suggested others like…Reader’s Digest, WEB MD, I mean, I felt we were on the same team!
The next day I message him and He says… “PLZ LVE ME ALNE U NEED INPATNET PSYCH. U R THE TYPE of PERSN WHO NEEDS SEROQUEL” (This from a guy who thinks Seroquel is the devil).
He went on to say I was psychotic.
I do get hypomanic and type really fast. This is daunting to some. I’m working on it. Swear.
It hurt to have someone flip on me like this.
I was stunned, a stone where my stomach used to be. I knew I had to block, unfriend, the whole bit.
Husband says…Hon, it’s just the internet. There’s tons of crazy people out there.
Is it really like that? I swear, because he had tardive, I felt this bond…I’m a little on the lonely side to begin with…and then this.
It’s best that I discovered his true colors before attempting to write an article about him, that’s for sure!
Sometimes bad breaks are for the good.