I want to write a book that chronicles some of the more informational, colorful, and courageous aspects of my 25 year illness. I want people to hold it in their hands and feel less alone, less odd, less..well, hopeless. The book might take five years to write. And I’ve got to buckle down and get practical. It’s not about the money. It’s about being findable, accessible to those who need to hear a message of hope about Tardive Dyskinesia, mood swings, finding a good doctor and all that stuff that comes with this.
It’s about people being able to relate or even think…”wow, that bitch is nuttier than I ever was! Maybe there is hope for me after all.” Of course it gets complicated with the Eating Disorder that has been a big player in the whole game. A lot of folks can’t relate to that.
But the eating disorder deserves its own book, really. We’ve all had different journeys. I read an article about a young woman in the New York Times Magazine who had been on lithium for 20 years. Her big quote besides the lithium lakes in Bolivia was “I don’t believe in God, But I believe in Lithium.” But lithium is causing her kidneys to underfunction by 50%, and if she doesn’t switch soon to Depakote, (and hope that the switch works for her) she will be on a transplant list for a kidney in a few years. I sort of dodged that bullet, since my psoriasis is totally inflamed by lithium to where I look like a Leper. So eventually I got antipsychotics, came down with tardive dyskinesia…so which bullet did I dodge after all? It all looks like tradeoffs to me, when you get down to it.