Faceless, Corporate CVS/Silverscript Part D Denying coverage of longtime medicine

I hate dealing with these huge corporations. They don’t care. We are numbers to them and they’ve decided my life is too expensive.

Denial of benefits. Denial of expedited appeals process. Third party arbitrator that they own.

It happens to everyone. A medicine you really need is suddenly no longer covered. In my case, CVS deemed it not medically necessary for me to have Relistor, a drug I take when I really can’t go. I take tons of meds because of Tardive Dyskinesia and a microdose of Suboxone for Chronic pain, part of Tardive Dyskinesia.

Then I do an expedited appeal, and I’m denied again, and now……I’m sent to what’s supposedly third party arbitration, and it’s a phone number that nobody answers. Then I call Silverscript back, file a grievance and ask them when I will hear back on the grievance and they say, well, maybe thirty days. Then I ask about this third party arbitrator, Maximus, the one where no one answers the telephone, and there’s no timeline on when I might hear back from something I mail or fax. Just unbelievable.

 

I ask you…where do I lodge my next complaint?  This story about denial of benefits has been told time and again…..But I’m going to write about it….I just don’t know where.

 

Desperately Seeking Slater (author Dr. Lauren Slater) “Blue Dreams: The Science and the Story of the Drugs that Change our Minds”

does anyone remember the Madonna film “Desperately Seeking Susan?” Well, I’m desperately seeking the author of this book…can’t seem to find a way to contact her electronically …and I am pretty sure she’ll be at my upcoming conference. BTW,

I just read this book.  If you are a woman with a mental health issue or are close to someone with same, you must read this book. Audaciously, she weaves memoir and science, something many authors say can’t be done.

Then…if this isn’t stranger than fiction…..She’s got all my diagnoses, eating disorder, borderline, adhd, memory issues, bipolar, and more. She’s got all my side effects…too….which if you’ve ever followed my blogs, are legend. She’s a wonderful author and if you’ve never read one of her books, “Prozac Diary” is wonderful and even deals with Prozac Poopout, a topic some publishers won’t touch with a ten foot pole.

Anyway, I’m about to go to New York to speak about Tardive Dyskinesia at the American Psychiatric Association

Faceless, Corporate CVS/Silverscript Part D Denying coverage of longtime medicine

I hate dealing with these huge corporations. They don’t care. We are numbers to them and they’ve decided my life is too expensive for them. Denial of benefits. Denial of expedited appeals process. Third party arbitrator that they own.

It happens to everyone. A medicine you really need is suddenly no longer covered. In my case, CVS deemed it not medically necessary for me to have Relistor, a drug I take when I really can’t go. I take tons of meds because of Tardive Dyskinesia and a microdose of Suboxone for Chronic pain, part of Tardive Dyskinesia.

Then I do an expedited appeal, and I’m denied again, and now……I’m sent to what’s supposedly third party arbitration, and it’s a phone number that nobody answers. Then I call Silverscript back, file a grievance and ask them when I will hear back on the grievance and they say, well, maybe thirty days. Then I ask about this third party arbitrator, Maximus, the one where no one answers the telephone, and there’s no timeline on when I might hear back from something I mail or fax. Just unbelievable.

 

I ask you…where do I lodge my next complaint?  This story about denial of benefits has been told time and again…..But I’m going to write about it….I just don’t know where.

 

Desperately Seeking Slater (author Dr. Lauren Slater) “Blue Dreams: The Science and the Story of the Drugs that Change our Minds”

does anyone remember the Madonna film “Desperately Seeking Susan?” Well, I’m desperately seeking the author of this book…can’t seem to find a way to contact her electronically …and I am pretty sure she’ll be at my upcoming conference. BTW,

I just read this book.  If you are a woman with a mental health issue or are close to someone with same, you must read this book. Audaciously, she weaves memoir and science, something many authors say can’t be done.

Then…if this isn’t stranger than fiction…..She’s got all my diagnoses, eating disorder, borderline, bipolar, and more. She’s got all my side effects…too….which if you’ve ever followed my blogs, are legend. She’s a wonderful author and if you’ve never read one of her books, “Prozac Diary” is wonderful and even deals with Prozac Poopout, a topic some publishers won’t touch with a ten foot pole.

Anyway, I’m about to go to New York to speak about Tardive Dyskinesia at the American Psychiatric Association

Speaking re Tardive Dyskinesia at American Psychiatric Association Conference NYC

 

Hi. I’m Allison Strong. I am speaking on my incendiary, suppressed, most combustible topic, Tardive Dyskinesia, at the APA in New York City. Oh, I already said that, right? I used to be a tireless self promoter, now I’m in my fifties would rather lazily bingewatch Lifetime’s “Mary Kills People” (ER doc by day, Euthanasia Doc by night)…the Canadian version of “Good Behavior,” sort of. Or play ‘hairties’ with my kats, Jazzykat, the black one, and Whitekat, the white one. Whitekat is a little scardiekat, but she likes to jump in the air and catch the hairties like a wide receiver on a football team. So now, you know I’m all about kats. Always have been a horse person and a Kat person.

 

If you’re going to APA, look me up at the Marriot.

Where Weinstein Went

When movie stars and other luminaries collapse under the weight of their collective compulsions and hubris, they usually head for Tucson, Arizona’s “Canyon Ranch,” which sounds more like spa than rehab. But there’s this part of Arizona an hour away from Phoenix called Wickenbug. It’s like Minnesota…it’s rehab central. This one company has about five of them, including a rehab program for codependency!  I know this because I went to one of their facilities for eating disorders, a place called “Rosewood Ranch.” But this is not about me. It’s about Harvey. He went to a sex addiction place called “Gentle Path” that’s got  such a tight, punitive 12-step curriculum, it’s gained the name “Brutal Path.” Apparently, one of the daily groups is about how certain behaviors injured others. Ouch! Anyway, Harvey bailed or got kicked out and he’s now in the symbolic location of self re-invention, Scottsdale, which is outside, but part and parcel of Phoenix, Arizona.

I loved Phoenix. I lived there from 1991-1999 and worked at their first FM alternative station, “The Edge,” and later, with Jonathan L at “The Q.” We played stuff nobody else would touch, like Diamanda Galas, James Murdoch’s label’s Plastiq and all sorts of punk and indie rock. We were so free back then. If there’s anywhere Harvey can self resurrect, it’s Scottsdale, although I read that he’s not been treated too kindly of late by his new neighbors, who regard him with expressions of scorn. I wonder if this is true. #metoo

 

Who benefits more from ‘Right To Try’, Patients or Drug Companies?

Last week there was another article on patients getting early access to drugs not yet approved by the FDA. Who would this benefit more? Patients or Drug Companies? I think it’s a way better deal for patients. It leaves pharma totally exposed to the chance that a few individuals, if they had adverse events, could rock the boat and jeopardize the medicines chance of FDA approval. That being said, if I was dying or terribly depressed again, and there was a new drug or new class of drug that had positive metrics, I’d sure want access.

There has been so much medical innovation lately..it’s hard to fathom.

Who benefits more from ‘Right To Try’, Patients or Drug Companies?

Last week there was another article on patients getting early access to drugs not yet approved by the FDA. Who would this benefit more? Patients or Drug Companies? I think it’s a way better deal for patients. It leaves pharma totally exposed to the chance that a few individuals, if they had adverse events, could rock the boat and jeopardize the medicines chance of FDA approval. That being said, if I was dying or terribly depressed again, and there was a new drug or new class of drug that had positive metrics, I’d sure want access.

There has been so much medical innovation lately..it’s hard to fathom.

Tardive Dyskinesia Videos

I did these videos three years ago, underneath crappy indoor overhead lighting and with no makeup on to cover my considerable sun spots from all the tennis and volleyball and running in South Florida. Still, their message resonates. No matter how hard they try to squelch us and our ungainly side effects, Tardive Dyskinesia happens (our population has grown three-fold in the last ten years) there are ways to prevent or delay its’ onset, and there is finally FDA-Approved first ever ‘first line’ TREATMENT!!!  Ladies, Tardive hits women 2-4x more than men, so you might want to see if you’re on one of the medications that cause it. The problematic medicines are in the ‘Dopamine Receptor Blocker’ category and they include products in wonderfully conceived, expansive mindstyle ads promising happy days ahead. The drugs are great, but they have regrettable fallout. Sometimes they are used for anxiety, sleep disorders, dementia-related agitation, cancer anorexia and aids (to stimulate appetite) and gastrointestinel disorders.

These are located on IBPF’s Youtube channel.

or you can Google Tardive Dyskinesia or Allison Strong if the link doesn’t get you there. from what I understand, these videos might be taken down shortly, so watch them while you still can.